About the Study

Nephrotic Syndrome Registry: A tool used to collect health information and laboratory samples to learn more about kidney diseases

Childhood onset nephrotic syndrome is a condition which affects the kidneys, causing them to leak protein from the blood into the urine. Nephrotic syndrome is a disease that can improve (remission) and worsen (relapse) at different times throughout childhood. NEPTUNE is a large North American study consisting of over 500 individuals and more than 5 years of research. By collecting health information and laboratory samples, our goal is to learn more about these kidney diseases and find better ways to prevent and treat people with nephrotic syndrome. New knowledge will be shared with researchers and the public.

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Full Study Name: NEPTUNE - Registry study, including blood draws, to better understand nephrotic syndrome