About the Study

Hypophosphatasia (HPP) Registry: A tool used to collect information about HPP

This study aims to enroll patients from the ages of 1 month to 99 years old with a clinical diagnosis of Hypophosphatasia (HPP). Hypophosphatasia is a rare, serious, and possibly fatal genetic disorder. The purpose of this research study is to collect information on patients who have HPP. HPP is a rare disease so there is not a lot of information known about the condition or how it changes as you get older. By collecting information from HPP patients we hope to be able to help other patients in the future.

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Full Study Name: An Observational, Longitudinal, Prospective, Long-Term Registry of Patients With Hypophosphatasia